Introduction

The second questionnaire has been communicated to project members asking them to

• Identify the specific laws and regulations which gevern the use of genetic information in research and biobanking in their nation states
• Analyse this regulation in the context of the expectations of privacy that were identified in stage one of the project
• Identify how this regulation is observed in practice, through literature review and discussion with the relevant authorities and scientific communities in their country.

The answers to these questionnaires have been used by our research coordinators in three regions to produce regional comparative reports, designed to answer strategic objective two of the PRIVILEGED project for their region. These reports and findings have been discussed at the Workshop which was held in Coimbra from the 13th - 14th November 2008.

The country webpages offer a list of resources on regulations of privacy protection in research using BBGDs.