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	<title>Comments on: Privacy Definition Counter</title>
	<link>http://www.privileged.group.shef.ac.uk</link>
	<description>privacy in research ethics and law</description>
	<pubDate>Sun, 12 Feb 2012 20:06:30 +0000</pubDate>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4240</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:14:13 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4240</guid>
		<description>Definition: the “right to be let alone”.
Authors: Warren &#038; Brandeis, 1890.
Reference: “The Right To Privacy” Harvard Law Review 4(5), 193-200.</description>
		<content:encoded><![CDATA[<p>Definition: the “right to be let alone”.<br />
Authors: Warren &#038; Brandeis, 1890.<br />
Reference: “The Right To Privacy” Harvard Law Review 4(5), 193-200.</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4239</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:12:32 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4239</guid>
		<description>Definition: "Privacy, as a whole or in part, represents control over transactions between person(s) and other(s), the ultimate aim of which is to enhance autonomy and/or to minimize vulnerability” 
Author: Stephen Margulis, 1977
Reference: Cited in Margulis (2003a) “Privacy as a Social Issue and Behavioural Concept” Journal of Social Issues 59(2), 243-261, at 10.</description>
		<content:encoded><![CDATA[<p>Definition: &#8220;Privacy, as a whole or in part, represents control over transactions between person(s) and other(s), the ultimate aim of which is to enhance autonomy and/or to minimize vulnerability”<br />
Author: Stephen Margulis, 1977<br />
Reference: Cited in Margulis (2003a) “Privacy as a Social Issue and Behavioural Concept” Journal of Social Issues 59(2), 243-261, at 10.</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4238</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:10:50 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4238</guid>
		<description>Definition: "Personal Privacy is a condition of inaccessibility of the person, his or her mental states, or information about the person to the senses or surveillance of others”.
Author: Anita Allen, 1988.
Reference: Allen, A.L. 1988. Uneasy Access: Privacy for Women in a Free Society. New York: Rowman &#038; Littlefield Publishers Inc.</description>
		<content:encoded><![CDATA[<p>Definition: &#8220;Personal Privacy is a condition of inaccessibility of the person, his or her mental states, or information about the person to the senses or surveillance of others”.<br />
Author: Anita Allen, 1988.<br />
Reference: Allen, A.L. 1988. Uneasy Access: Privacy for Women in a Free Society. New York: Rowman &#038; Littlefield Publishers Inc.</p>
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	</item>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4237</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:08:26 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4237</guid>
		<description>Definition: “privacy [is] the condition of being protected from unwanted access by others – either physical access, personal information or attention. Claims to privacy are claims to control access”.

Author: Bok, 1982.
Reference: Cited in “Privacies: An Overview”  In Rössler B. (ed.) Privacies. USA, Stanford University Press 2004.</description>
		<content:encoded><![CDATA[<p>Definition: “privacy [is] the condition of being protected from unwanted access by others – either physical access, personal information or attention. Claims to privacy are claims to control access”.</p>
<p>Author: Bok, 1982.<br />
Reference: Cited in “Privacies: An Overview”  In Rössler B. (ed.) Privacies. USA, Stanford University Press 2004.</p>
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	</item>
	<item>
		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4236</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:06:55 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4236</guid>
		<description>Definition: "Privacy 'is the state of the agent having control over a realm of intimacy, which contains her decisions about intimate access to herself (including intimate information access) and her decisions about her own intimate actions'".
Author: Inness
Reference: Cited in “Privacies: An Overview”  In Rössler B. (ed.) Privacies. USA, Stanford University Press 2004.
</description>
		<content:encoded><![CDATA[<p>Definition: &#8220;Privacy &#8216;is the state of the agent having control over a realm of intimacy, which contains her decisions about intimate access to herself (including intimate information access) and her decisions about her own intimate actions&#8217;&#8221;.<br />
Author: Inness<br />
Reference: Cited in “Privacies: An Overview”  In Rössler B. (ed.) Privacies. USA, Stanford University Press 2004.</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4235</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:05:20 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4235</guid>
		<description>Definition: “A person has privacy to the extent that others have limited access to him, limited access to the intimacies of his life, or limited access to his thoughts or body”. 

Author: Schoeman, 1984.
Reference: Cited in Newell 1995 “Perspectives on Privacy” Journal of Environmental Psychology 15, 87-104, at 90.</description>
		<content:encoded><![CDATA[<p>Definition: “A person has privacy to the extent that others have limited access to him, limited access to the intimacies of his life, or limited access to his thoughts or body”. </p>
<p>Author: Schoeman, 1984.<br />
Reference: Cited in Newell 1995 “Perspectives on Privacy” Journal of Environmental Psychology 15, 87-104, at 90.</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4234</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 12:02:56 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4234</guid>
		<description>"The [current] privacy paradigm rests on a conception of society as comprising relatively autonomous individuals. [...] The modern claim to privacy, then, is based on a notion of a boundary, between the individual and other individuals, and between the individual and the state."

Author: Bennett, C.J. and Raab, C.D
Reference: Bennett, C.J. and Raab, C.D. 2006. The Governance of Privacy: Policy Instruments in Global Perspective. Cambridge (USA): MIT Press.</description>
		<content:encoded><![CDATA[<p>&#8220;The [current] privacy paradigm rests on a conception of society as comprising relatively autonomous individuals. [&#8230;] The modern claim to privacy, then, is based on a notion of a boundary, between the individual and other individuals, and between the individual and the state.&#8221;</p>
<p>Author: Bennett, C.J. and Raab, C.D<br />
Reference: Bennett, C.J. and Raab, C.D. 2006. The Governance of Privacy: Policy Instruments in Global Perspective. Cambridge (USA): MIT Press.</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4232</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 17 Apr 2009 10:12:48 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-4232</guid>
		<description>“The right to privacy consists essentially in the right to live one’s own life with a minimum of interference. It contains private, family and home life, physical and moral integrity, honour and reputation, avoidance of being placed in a false light, non-revelation of irrelevant and embarassing facts, unauthorised publication of private photographs, protection against misuse of private communications, protection from disclosure of information given or received by the individual confidentially. Those who, by their own actions, have encouraged indiscreet revelations about which they complain later on, cannot avail themselves of the right to privacy”. 
Author: Council of Europe, Parliamentary Assembly
Reference: &lt;a href="http://assembly.coe.int/Mainf.asp?link=/Documents/AdoptedText/ta70/ERES428.htm" rel="nofollow"&gt;Resolution 428 of 23 Jan 1970&lt;/a&gt; containing a declaration on mass communication media and human rights.</description>
		<content:encoded><![CDATA[<p>“The right to privacy consists essentially in the right to live one’s own life with a minimum of interference. It contains private, family and home life, physical and moral integrity, honour and reputation, avoidance of being placed in a false light, non-revelation of irrelevant and embarassing facts, unauthorised publication of private photographs, protection against misuse of private communications, protection from disclosure of information given or received by the individual confidentially. Those who, by their own actions, have encouraged indiscreet revelations about which they complain later on, cannot avail themselves of the right to privacy”.<br />
Author: Council of Europe, Parliamentary Assembly<br />
Reference: <a href="http://assembly.coe.int/Mainf.asp?link=/Documents/AdoptedText/ta70/ERES428.htm" rel="nofollow">Resolution 428 of 23 Jan 1970</a> containing a declaration on mass communication media and human rights.</p>
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		<title>By: Helena Moniz</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-36</link>
		<author>Helena Moniz</author>
		<pubDate>Sun, 30 Mar 2008 18:55:01 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-36</guid>
		<description>A very interesting distinction, to think of:
"Privacy and confidentiality are terms sometimes used interchangeably. Although related to each other, these
are not identical concepts. Fundamentally, privacy is about persons; confidentiality is about information.
Privacy includes both the idea of respect for personal autonomy and an interest in freedom from
uninvited and unwarranted intrusions. Privacy refers to our right to control access to ourselves and to our
personal information. In the context of research, an individual’s right to privacy is generally protected by
the right to refuse to participate in research. Privacy issues arise when investigators wish to use identifiable
biological material or records without obtaining consent.
The principle of confidentiality provides an assurance that personal information will not be disclosed
to unauthorised persons, processes, or devices. Confidentiality refers to agreements made with subjects,
through the consent process, about if and how information provided by individuals will be protected.
These agreements may include descriptions about whether or not identifiers will be retained, who will
have access to identifiable data and what methods will be used to safeguard data. Confidentiality can
also be implied by the circumstances and may not be dependent on an express agreement.
Security is related to privacy and confidentiality in that it ensures and protects privacy and confidentiality.
Security concerns the measures implemented by an organisation to ensure that there is no undesired
disclosure of confidential information. An assurance of confidentiality is meaningless without attention to
security safeguards."
Author:Irish Council for Bioethics
Reference: Human Biological Material: Recommendations for Collection, Use and Storage in Research
2005</description>
		<content:encoded><![CDATA[<p>A very interesting distinction, to think of:<br />
&#8220;Privacy and confidentiality are terms sometimes used interchangeably. Although related to each other, these<br />
are not identical concepts. Fundamentally, privacy is about persons; confidentiality is about information.<br />
Privacy includes both the idea of respect for personal autonomy and an interest in freedom from<br />
uninvited and unwarranted intrusions. Privacy refers to our right to control access to ourselves and to our<br />
personal information. In the context of research, an individual’s right to privacy is generally protected by<br />
the right to refuse to participate in research. Privacy issues arise when investigators wish to use identifiable<br />
biological material or records without obtaining consent.<br />
The principle of confidentiality provides an assurance that personal information will not be disclosed<br />
to unauthorised persons, processes, or devices. Confidentiality refers to agreements made with subjects,<br />
through the consent process, about if and how information provided by individuals will be protected.<br />
These agreements may include descriptions about whether or not identifiers will be retained, who will<br />
have access to identifiable data and what methods will be used to safeguard data. Confidentiality can<br />
also be implied by the circumstances and may not be dependent on an express agreement.<br />
Security is related to privacy and confidentiality in that it ensures and protects privacy and confidentiality.<br />
Security concerns the measures implemented by an organisation to ensure that there is no undesired<br />
disclosure of confidential information. An assurance of confidentiality is meaningless without attention to<br />
security safeguards.&#8221;<br />
Author:Irish Council for Bioethics<br />
Reference: Human Biological Material: Recommendations for Collection, Use and Storage in Research<br />
2005</p>
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		<title>By: Jessica Wright</title>
		<link>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-35</link>
		<author>Jessica Wright</author>
		<pubDate>Fri, 14 Mar 2008 15:33:04 +0000</pubDate>
		<guid>http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/definitioncounter/#comment-35</guid>
		<description>Definition: “the right is based essentially upon the recognition of the individual’s interest that he should be protected against any intrusion into his intimate life and into any part of his existence which he might legitimately desire to keep to himself. This should include protection against intrusion into one’s private affairs, against the public disclosure of private facts, and against publicity which places one in a false light in the public eye.”
Author: A. H. Robertson 
Reference: Privacy and Human Rights, Manchester University Press, 1973, viii.</description>
		<content:encoded><![CDATA[<p>Definition: “the right is based essentially upon the recognition of the individual’s interest that he should be protected against any intrusion into his intimate life and into any part of his existence which he might legitimately desire to keep to himself. This should include protection against intrusion into one’s private affairs, against the public disclosure of private facts, and against publicity which places one in a false light in the public eye.”<br />
Author: A. H. Robertson<br />
Reference: Privacy and Human Rights, Manchester University Press, 1973, viii.</p>
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