Comments on: Genetic Database Definitions http://www.privileged.group.shef.ac.uk privacy in research ethics and law Sun, 12 Feb 2012 11:59:51 +0000 http://wordpress.org/?v=2.2.1 By: Jessica Wright http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-42 Jessica Wright Thu, 24 Apr 2008 14:24:17 +0000 http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-42 Human biobanks and genetic research databases (HBGRDs) are structured resources that can be used for the purpose of genetic research, which include: a) human biological materials and/or information generated from the analysis of the same; and b) extensive associated information." Source: OECD Draft Guidelines for Human Biobanks and Genetic Research Databases, 2008 http://www.oecd.org/document/63/0,3343,en_2649_34537_40305535_1_1_1_1,00.html#11 Human biobanks and genetic research databases (HBGRDs) are structured resources that can be used for the purpose of genetic research, which include: a) human biological materials and/or information generated from the analysis of the same; and b) extensive associated information.”

Source: OECD Draft Guidelines for Human Biobanks and Genetic Research Databases, 2008
http://www.oecd.org/document/63/0,3343,en_2649_34537_40305535_1_1_1_1,00.html#11

]]> By: Jessica Wright http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-12 Jessica Wright Tue, 08 Jan 2008 08:34:34 +0000 http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-12 Definition of human population genetic databases: “A collection of genetic, medical and, in some cases, genealogical data from a large number of people, arranged in a systematic way so as to be searchable” Reference: ELSAGEN Project Definition of human population genetic databases: “A collection of genetic, medical and, in some cases, genealogical data from a large number of people, arranged in a systematic way so as to be searchable”
Reference: ELSAGEN Project

]]> By: Jessica Wright http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-11 Jessica Wright Tue, 08 Jan 2008 08:25:27 +0000 http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-11 Definition: "A genomic database is a collection of data arranged in a systematic way so as to be searchable. Genomic data can include inter alia, nucleic acid and protein sequence variants (including neutral polymorphisms, susceptibility alleles to various phenotypes, pathogenic mutations), and polymorphic haplotypes." Reference: HUGO Statement on Human Genomic Databases, 2002 Definition: “A genomic database is a collection of data arranged in a systematic way so as to be searchable. Genomic data can include inter alia, nucleic acid and protein sequence variants (including neutral polymorphisms, susceptibility alleles to various phenotypes, pathogenic mutations), and polymorphic haplotypes.”
Reference: HUGO Statement on Human Genomic Databases, 2002

]]> By: jwright http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-6 jwright Sun, 23 Sep 2007 19:49:39 +0000 http://www.privileged.group.shef.ac.uk/projstages/stage1/introduction/gendb-definitions/#comment-6 Definition: The current trend "that predominates in the world of genomics, 'database' includes physical samples and the information attached" Reference:Cambon-Thomson, A., presentation in Oct 2006 for the <a href="http://www.rzpd.de/tissuedatabase/info/crip_news/symposium" rel="nofollow">RZPD Tissue Interface Symposium</a> Definition: The current trend “that predominates in the world of genomics, ‘database’ includes physical samples and the information attached”
Reference:Cambon-Thomson, A., presentation in Oct 2006 for the RZPD Tissue Interface Symposium

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