Surveys

Keyword: Privacy

  1. Strömholm, S. (1967) Right of Privacy and Rights of the Personality: A Comparative Survey (Stockholm: Nordstedt), 60.

Keyword: Genetic Privacy

  1. Human Genetics Commission UK (HGC) (2001) Public Attitudes to the Uses of Human Genetic Information http://www.hgc.gov.uk/Client/document.asp?DocId=41&CAtegoryId=8

Keyword: Genetic Databases/Biobanks

  1. European Commission (2004) Survey on opinions from National Ethics Committees or similar bodies, public debate and national legislation in relation to human biobanks - October 2004 http://ec.europa.eu/research/biosociety/bioethics/documents_en.htm
  2. Godard, B., Schmidtke, J., Cassiman, J. and Ayme, S. (2003) “Data Storage and DNA Banking for Biomedical Research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective” European Journal of Human Genetics 11 Suppl 2, S88-S122
  3. Norwegian University of Science and Technology (NTNO) (2004) Foresight Survey: Health Surveys and Biobanking - a Foresight analysis towards 2020 www.ntnu.no/medtek/dokumenter/foresight_medtek_2004.pdf
  4. People Science & Policy (2002) UK Biobank Consultation on the Ethical and Governance Framework www.ukbiobank.ac.uk/docs/people-science-policy.pdf
  5. Scott et al (2005) “Ethics in Practice: Conversations About Biobanks” Critical Public Health, Dec. 2005; 15(4): 359-368
  6. UK House of Parliament Science and Technology Committee (2001) Fourth Report on Human Genetic Databases: Challenges and Opportunities